Friday, May 17, 2013

E-man is the Big 5!

Thursday, May 31, 2012

I can't believe Eliah is now five years old.  To be honest, I have never even thought about making it this far.  We haven't known what to expect, so I never let myself look very far into the future with him.  And here we are, at the age of five, happy and growing (he's the size of a 7yr old)!!!

We had a huge party for Eliah this past weekend, his first party ever.  It was a great success, and we were all able to come together as one big family to show how much we love Eliah and how proud we are of him.  His awesome Dragon Dream Cake was provided a non-profit organization, Icing Smiles.  They provide cakes to children with life-threatening conditions; and it was a big hit with all the kids.

Eliah still has many seizure problems, and we are working towards getting a nurse to come to the house.  Unfortunately, because we are capable, and we do our own CPR to get Eliah breathing again, instead of the ER, we haven't been able to qualify for a nurse. That's the way the rules were written, and in my opinion, it's ridiculous.

He is still without any therapies in place (ie Physical, Speech or Occupational) since getting kicked out for being too "risky".  But we are in the works for having him evaluated by the school system to have home therapies and teaching. I do many things with him at home, including exercises, reading, and teaching, and still should do much more with him.  The problem is, he wants to learn and do things so badly, but pushing him the least little bit causes more seizures.  It's frustrating for everyone.

We are, however, very excited that Make-A-Wish will be starting construction on Eliah's Handicapped accessible playground on July 1st!! I can't wait to see what they have in store for him. The very first picture (above) is part of Applebee's campaign to raise money for Eliah, and many other children's wishes.  If you want to donate directly, you can go to and follow the prompts.

I am so proud of my big boy and how far he's come from those traumatic days in the first year of his life.  I am proud to be the mother of these two amazing children.  And although I won't be looking too far ahead, as it is overwhelming, scary, and unknown, I will look at the past five years and be so thankful for the love and understanding we have all been able to show to Eliah.  He is one special dude.

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