Friday, May 17, 2013

Eliah Update

Friday, January 18, 2008 

Eliah has been doing great. We have started the process of qualifying for the state program for PT, OT and other services. We/they think he may have some vision problems, so the School for the Deaf and Blind is coming out next week.

Eliah has been trying very hard to sit up, but he cannot hold his head up for very long. His head is huge and heavy, and he can only hold it up for about 30 seconds at a time. He weighed in last week at 21 lbs at 7 1/2 months. He is breaking my back! I have to hold him all day, every day. I was so happy one day last week that I had 8 minutes of not holding him. I was able to wash bottles, unload & load the dishwasher, and straighten up. It's amazing what you can accomplish in a frantic 8 minutes. All napping and all awake time is holding him. Ughh! I can't wait until he gets older!

He has shown great improvement with other things though. His seizures have mostly stopped and the doctor has further reduced his medication. We see him breaking through the medication "fog" every now and then. He is actually looking at toys now. And he is able to grab toys (with huge effort) that hang down from his playmat. And the key is, he is able to grab with either hand. So we have been thrilled.

The last time we went to the Pediatrician, he mentioned Cerebral Palsy several times, so we have been worried about everything Eliah does. And other than some stiffness in his legs, he seems to be doing everything well, just at a delayed rate. Still no rolling over yet though.

Eliah now has four teeth. The fifth one is breaking through today. And he has been eating solids successfully for the past month (another huge deal).

Overall, things are well. It's just our version of normal.


My Wild Child.....I didn't even change her clothes or brush her hair today. I feel so bad. I just went to comb her hair and discovered that she has glue in it.




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