Friday, May 17, 2013

Eliah's EEG

Tuesday, November 29, 2011

Eliah had another major seizure last night, where he turned blue and Kelley had to breathe for him.  I think that was the first time Kelley has had to do that, and he seemed pretty shaken by the whole experience as you can imagine. 

We had an EEG this morning at the Neurologist's office. It was not good. Eliah had a seizure as they were putting the electrodes on him, and then another seizure after it was over, as we were waiting for the doctor.

The doctor said that his EEG pattern was not normal and he was concerned. He scheduled a 24hr EEG at the hospital on Thursday at 9am to try and determine what to do from this point. I asked him about the possibility of Eliah dying, and he explained that it is rare, but does happen. He said that approximately one a year from his office dies (which seemed like a lot to me). And he explained that there are children that come in that are better than Eliah, and some that are worse, but that Eliah is at a higher risk of death because his seizures affect his autonomic responses like breathing and heart rate. That's what I was afraid of.

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