Friday, May 17, 2013

Friday Update

Friday, August 24, 2007

Okay, the Hematology Dr. came in this morning and said that there is no evidence of internal bleeding based on the CT scan. It's possible that DS had a very small bleed (for instance, his front gum was purple where a tooth would be coming in). DS is hypersensitive to touch, smell, sound and temperature. He probably went nuts over something small.

We are still going to be here in the hospital, probably till Wednesday. The Neurologist is planning a 24hr EEG for tomorrow. There is an MRI scheduled for Tuesday morning. Today we have nothing planned, we just have to sit and wait (and look up scary info on the internet).

I will update when I have new info. And thanks so much for the prayers! We need them!

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Update #2

Okay, the Neurologist spent a long time with us today. We went over his CT scan of his brain "bit by bit". When they said his brain was a little bit small, I thought he meant a regular brain but just a little bit smaller. NO. A normal brain basically comes right to the edge of the skull. DS's brain seems to be missing parts, especially on the left side. Completely not what I expected.

He also said that the calcifications on his brain are not tumors, which is really what we were hoping for. They can remove tumors and he would be able to have a somewhat normal life. Now we pretty much know that this is the result of a virus that I must have acquired during pregnancy. I think CMV is the worst case scenario for us because we understand that seizures only happen in extreme cases. And problems with CMV can get progressively worse as he ages.

Nobody is really speculating yet as to what is going on, but with tumors ruled out, that takes away pretty much anything else that causes calcifications on the brain.

I believe everything happens for a reason. It's just my job to adapt. Not always easy, but I have a great support network (including you wonderful, wonderful ladies!) and a compassionate, loving and understanding husband. I don't think I would be able to handle any of this without him.

Also, if you want to see what the EEG looks like, click here.
http://picasaweb.google.com/duty10f/EliahJames
Scroll down to the bottom, and click on the very last pic of DS. The video may take a minute to load. 

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