Back in September, I was working with Eliah's Neurologist to control newly found seizures. Eliah was having little "jerks" throughout the day, and I wasn't sure what they were, so we did an EEG. Turns out, those jerks were partial seizures. He was having 50-200 a day, and we were trying in inch up one of his current medications to try and control them.
With the new custody arrangement, Kelley assured me and the judge that his new wife would quit her job and take care of Eliah full time in their home like I had always done. Eliah was already set up for homebound schooling, physical therapy, occupational therapy, and speech therapy. However, before the court order was even signed, they took Eliah to the doctor to change his medication completely, and then requested a special review for school without my knowledge.
Although I adamantly disagreed with taking Eliah from one hour a day in the home to now almost nine hours a day (a full day of school and an hour bus ride each way), I couldn't do anything but watch. I did, however, make my opinion known, and I explained my concerns over Eliah's health and safety. I am still his mother and biggest advocate, you know.
So, Monday, November 4th, was Eliah's first day of Big Boy School. There are five students total in the class, all requiring special needs. I believe Eliah is the only one without a feeding tube. Eliah will have a nurse with him full time, and he will now get most of his therapies there at school. They even have a Multi-Sensory Environment with swing and ball pit (which makes me happy).
I talked with Eliah's teacher at length, and gave her suggestions of things that can help Eliah. She helped calm my fears and explained that Eliah is in good hands and that she will keep me in the loop. And she was kind enough to send pictures of Eliah on his first couple days of school.
On his first day of school, Eliah was the "Special Helper of the Day". The teacher is so pleased with Eliah's ability to interact with the her and other students (He even has a girlfriend already). She sees how much Eliah comprehends and can communicate through non-verbal actions (this is something that I've been trumpeting to deaf ears for years now). And she sees how much Eliah wants to participate and learn. I'm so happy that Eliah has another advocate and that she is so kind.
So, in saying all of this, I admit that I am happy that, if Eliah cannot be with me during the day, that he is with people that will not only look after his best interests and needs, but listens to me and allows me to be a part of Eliah's plans and activities.
Here are some pics of Eman enjoying his new school environment...
|Eman snuggling with his new teacher|
|Floor time with toys|
|Working with new toys|
|My happy boy|
|Eman eating lunch, with my voice on the phone in the cup holder. :)|