Monday, November 11, 2013

Turbulence

Eliah has been having small jerks/startles for several months, but never realized they were seizures.  I thought maybe they were his hip joints rubbing together, biting his tongue, or something that I just didn't know.  When I took Eliah to the Neurologist in August, it was just for a check up.  While at the doctor's office, Eliah startled a couple times and the doctor took notice.  He immediately requested an EEG.  

We went back to do the EEG for about 45 minutes, and during that time, Eliah had the "jerks" about every three minutes.  The doctor came in to tell me that those were seizures, and that Eliah was having LOTS of them.  Based on the fact that he was having them every 3-4 minutes all day long, I calculated that he was having 50-200 a day on top of his bi-weekly large seizures.

Last night, Kelley called to tell me that Eliah had a major seizure in the car.  He stopped breathing, and it took 15 minutes before Versed (sedative) started to calm him down.  When they got to the emergency room, Eliah's temperature was 104 and chest x-ray showed that he has pneumonia.  Eliah also spent several hours on an EEG today.  

When I arrived at the hospital this afternoon, Eliah was still getting his EEG.  The Neurologist was called in to see that Eliah's seizures have gotten much worse since August.  He said that his brain is in almost a constant state of seizure while Eliah is sleeping, and there are many while he is awake.  The seizures are stemming from the Occipital lobe of the brain.  He wants to see if that is just because of whatever Eliah's illness is, or if it's all the time, so he wants to repeat the EEG in a few days. 

I personally believe that the increased seizure activity is due to stress of his new schedule with school and the fact that the children have not been able to see me on a regular basis.  

4 comments:

  1. I pity them. It is beyond sad that they are not willing and able to accept the love that you have for your children and the love that your children have for you.

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  2. This is so heartbreaking. The ugliness within them is just incomprehensible. Praying for you all...

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  3. Oh my gosh hun! I have no words for you... I pray that you get resolve with this issue. You are his mama. You should be around him NO MATTER WHAT. You should be allowed access to your children. This makes me so sad for you :(

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  4. Keep strong and hold your head high, because things will be better and when they do you can show those amazing kids how awesome of mom you are. We love you dearly and are sending you the strength you need every day.

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